Factors associated with the quality of life of family carers of people with dementia: A systematic review

Journal article

Farina, Nicolas, Page, Thomas E., Daley, Stephanie, Brown, Anna, Bowling, Ann, Basset, Thurstine, Livingston, Gill, Knapp, Martin, Murray, Joanna and Banerjee, Sube 2017. Factors associated with the quality of life of family carers of people with dementia: A systematic review. Alzheimer's and Dementia: The Journal of the Alzheimer's Association. 13 (5), pp. 572-581. https://doi.org/10.1016/j.jalz.2016.12.010
AuthorsFarina, Nicolas, Page, Thomas E., Daley, Stephanie, Brown, Anna, Bowling, Ann, Basset, Thurstine, Livingston, Gill, Knapp, Martin, Murray, Joanna and Banerjee, Sube
Abstract

Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. Searches on terms including “carers,” “dementia,” “family,” and “quality of life” in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes. A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer–patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well‐being; support received; carer independence; carer self‐efficacy; and future. The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it.

KeywordsHealth Policy; Developmental Neuroscience; Epidemiology; Cellular and Molecular Neuroscience; Geriatrics and Gerontology; Psychiatry and Mental health; Clinical Neurology
Year2017
JournalAlzheimer's and Dementia: The Journal of the Alzheimer's Association
Alzheimer's & Dementia
Journal citation13 (5), pp. 572-581
PublisherWiley
ISSN1552-5260
Digital Object Identifier (DOI)https://doi.org/10.1016/j.jalz.2016.12.010
Web address (URL)http://hdl.handle.net/10545/624752
http://doi.wiley.com/10.1002/tdm_license_1.1
hdl:10545/624752
Publication dates03 Feb 2017
Publication process dates
Deposited29 Apr 2020, 11:28
Accepted2017
Rights

© 2017 The Authors. Published by Elsevier Inc. on behalf of the Alzheimer's Association.

ContributorsBrighton and Sussex Medical School, University of Kent, University of Southampton, Lived Experience Advisory Panel, Sussex Partnership NHS Foundation Trust, Hove, University College London, London School of Economics and Centre for Dementia Studies, Brighton and Sussex Medical School, Brighton
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