Exploring the lived experiences of patients with fibromyalgia in the United Kingdom: a study of patient-general practitioner communication

Objective
Fibromyalgia is often viewed as a contested illness, with individuals facing scepticism from healthcare providers, which can hinder their diagnostic and treatment experiences. This study aimed to explore the lived experiences of individuals with fibromyalgia in the United Kingdom, focusing on their interactions with general practitioners.

Materials and methods
Six participants (one male, five females; mean age, 44.0 ± 13.7 years), all formally diagnosed with fibromyalgia, were recruited via social media. Interpretative Phenomenological Analysis was used to analyse the data, enabling the interpretation of participants’ nuanced experiences. Semi-structured interviews were conducted to gather detailed accounts of their diagnosis, treatment, and communication experiences.

Results
Two primary themes emerged from the analysis. ‘Challenges in obtaining accurate diagnosis and adequate treatment’, reflected participants’ feelings of invalidation and including sub-themes of ‘medical mystery and misdiagnosis’ and ‘sex bias in healthcare’. ‘Importance of trust in fibromyalgia management’, highlighted the crucial role of trust in improving care, with sub-themes of ‘positive impact of active listening’ and ‘improved trust over time’.

Conclusion
This study highlights the need for a more patient-centred, compassionate, and collaborative approach to fibromyalgia management. Addressing trust, diagnostic accuracy, and sex bias may lead to better overall outcomes for fibromyalgia patients.