A Qualitative Study on Cancer Care Burden: Experiences of Iranian Family Caregivers.

Journal article


Hassankhani H, Eghtedar S, Rahmani A, Ebrahimi H and Whitehead B 2019. A Qualitative Study on Cancer Care Burden: Experiences of Iranian Family Caregivers. Holistic Nursing Practice. https://doi.org/10.1097/hnp.0000000000000309
AuthorsHassankhani H, Eghtedar S, Rahmani A, Ebrahimi H and Whitehead B
Abstract

The aim of this study was to explore the experiences of Iranian family caregivers with regard to the burden of caregiving. This is in the context of illuminating and identifying the experiences of family members from different contextual perspectives. In this qualitative study, purposive sampling was conducted in 2016. Data were collected using semistructured interviews and were analyzed using content analysis. Data analysis identified 4 categories and 8 subcategories: (1) burnout (physical problems and psychoemotional stress), (2) role conflict (balancing caring roles and family responsibilities; failure in professional or educational roles), (3) health system tensions (inadequate support from health professionals; ignorance of family members in health structure), and (4) social challenges of cancer (economic burden; taboo of cancer). In conclusion, nurses need to provide individualized support and counseling that address the sources of burden. This highlights the benefit of training health care professionals to provide culturally sensitive support based on family caregivers' needs and circumstances.

KeywordsBurden; Cancer care; Family caregiver; Qualitative study
Year2019
JournalHolistic Nursing Practice
PublisherLippincott, Williams & Wilkins
ISSN0887-9311
1550-5138
Digital Object Identifier (DOI)https://doi.org/10.1097/hnp.0000000000000309
Web address (URL)http://europepmc.org/abstract/med/30422921
Publication datesJan 2019
Publication process dates
Deposited08 Dec 2018, 11:50
Rights

Archived with thanks to Holistic Nursing Practice

ContributorsTabriz University, Iran and University of Derby
File
File Access Level
Open
File
File Access Level
Open
File
Permalink -

https://repository.derby.ac.uk/item/935vx/a-qualitative-study-on-cancer-care-burden-experiences-of-iranian-family-caregivers

Download files

  • 106
    total views
  • 97
    total downloads
  • 1
    views this month
  • 4
    downloads this month

Export as

Related outputs

An initiative for student nurses to practise clinical skills at home
Whitehead, B. and Ansell, H. 2021. An initiative for student nurses to practise clinical skills at home. Nursing Times.
A history of nurse education and the clinical nurse educator
Whitehead, Bill 2019. A history of nurse education and the clinical nurse educator. in: Routledge.
A preceptorship toolkit for nurse managers, teams and healthcare organisations
Owen, Patricia, Whitehead, Bill, Beddingham, Elaine and Simmons, Maxine 2020. A preceptorship toolkit for nurse managers, teams and healthcare organisations. Nursing Management. 27 (4), pp. 20-25.
Comparing intrapartum ultrasound and clinical examination in the assessment of fetal head position in African women
Wiafe, Y., Whitehead, B., Venables, H. and Dassah, E.T. 2019. Comparing intrapartum ultrasound and clinical examination in the assessment of fetal head position in African women. Journal of Ultrasonography. 19, p. 249–254. https://doi.org/10.15557/jou.2019.0037
Acceptability of intrapartum ultrasound by mothers in an African population
Wiafe, Yaw Amo, Whitehead, Bill, Venables, Heather and Dassah, Edward T 2019. Acceptability of intrapartum ultrasound by mothers in an African population. Journal of Ultrasound. 23, pp. 55-59. https://doi.org/10.1007/s40477-019-00382-5
‘Preceptorship support is an effective way to invest in NQNs’
Whitehead, B. 2018. ‘Preceptorship support is an effective way to invest in NQNs’. EMAP.
Intrapartum ultrasound assessment of cervical dilatation and its value in detecting active labor
Whitehead, B. 2018. Intrapartum ultrasound assessment of cervical dilatation and its value in detecting active labor. Journal of Ultrasound. https://doi.org/10.1007/s40477-018-0309-2
Sonographic parameters for diagnosing fetal head engagement during labour
Wiafe, Y.A., Whitehead, B., Venables, H. and Odoi, A.T. 2018. Sonographic parameters for diagnosing fetal head engagement during labour. Ultrasound. https://doi.org/10.1177/1742271x18755080
Trapped like a butterfly in a spider's web: Experiences of female spousal caregivers in the care of husbands with severe mental illness.
Rahmani, F., Ebrahimi, H., Seyedfatemi, N., Areshtanab, N. A., Ranjbar, F. and Whitehead B 2018. Trapped like a butterfly in a spider's web: Experiences of female spousal caregivers in the care of husbands with severe mental illness. Journal of Clinical Nursing. 27 (7-8). https://doi.org/10.1111/jocn.14286
Maintaining student enrolment after the removal of bursaries
Holt, P., Whitehead, B. and Budd, C. 2018. Maintaining student enrolment after the removal of bursaries. Nursing Times. 114 (7).
Challenges in the clinical education of the nursing profession in Iran: A qualitative study
Jasemi, M., Whitehead, B., Habibzadeh, H., Zabihi, R.E. and Rezaie, S.A. 2018. Challenges in the clinical education of the nursing profession in Iran: A qualitative study. Nurse education today. 67, pp. 21-26. https://doi.org/10.1016/j.nedt.2018.04.010
Barriers to Family Caregivers’ Coping With Patients With Severe Mental Illness in Iran
Ebrahimi, Hossein, Seyedfatemi, Naeimeh, Namdar Areshtanab, Hossein, Ranjbar, Fatemeh, Thornicroft, Graham, Rahmani, Farnaz and Whitehead, Bill 2018. Barriers to Family Caregivers’ Coping With Patients With Severe Mental Illness in Iran. Qualitative Health Research. 28 (6), pp. 987-1001. https://doi.org/10.1177/1049732318758644
Collaborative development of an accelerated graduate entry nursing programme outside of traditional funding mechanisms
Whiffin, Charlotte Jane, Clarke, Helen, Brundrett, Heather, Baker, D. and Whitehead, Bill 2018. Collaborative development of an accelerated graduate entry nursing programme outside of traditional funding mechanisms. Nurse Education in Practice. 28, pp. 314-317. https://doi.org/10.1016/j.nepr.2017.09.017
Attributes of Iranian new nurse preceptors: A phenomenological study
Borimnejad, Leili, Valizadeh, Sousan, Rahmani, Azad, Whitehead, Bill and Shahbazi, Shahla 2018. Attributes of Iranian new nurse preceptors: A phenomenological study. Nurse Education in Practice. 28, pp. 121-126. https://doi.org/10.1016/j.nepr.2017.10.018
An investigation into the effects of clinical facilitator nurses on medical wards
Whitehead, Bill 2010. An investigation into the effects of clinical facilitator nurses on medical wards. Thesis
Transition to nursing: Preparation for practice
Whitehead, Bill and Brown, Michelle 2017. Transition to nursing: Preparation for practice. Open University Press.
The effectiveness of intrapartum  ultrasonography in assessing cervical dilatation, head station and position: A systematic review and meta-analysis
Wiafe, Y.A., Whitehead, B., Venables, H. and Nakua, E.K. 2016. The effectiveness of intrapartum  ultrasonography in assessing cervical dilatation, head station and position: A systematic review and meta-analysis. Ultrasound. https://doi.org/10.1177/1742271x16673124
"Nurses who become ACPs should not be mini medics"
Whitehead, B. 2016. "Nurses who become ACPs should not be mini medics". Nursing Times.
Developing a collaborative research partnership.
Beddingham, Elaine and Whitehead, Bill 2015. Developing a collaborative research partnership. Nursing Standard. https://doi.org/10.7748/ns.29.40.44.e9480
Will graduate entry free nursing from the shackles of class and gender oppression?
Whitehead, Bill 2010. Will graduate entry free nursing from the shackles of class and gender oppression? Nursing Times.
Does the risk of reprisal prevent nurses blowing the whistle on bad practice?
Barker, Denise and Whitehead, Bill 2010. Does the risk of reprisal prevent nurses blowing the whistle on bad practice? Nursing Times.
Using more healthcare areas for placements
Sherratt, Lou, Young, Alwyn, Brundrett, Heather, Whitehead, Bill and Collins, Guy 2013. Using more healthcare areas for placements. Nursing Times.
Getting the most out of your clinical placement.
Whitehead, Bill 2013. Getting the most out of your clinical placement. Nursing Times.
Using specialist nurse mentors to boost placement capacity.
Bailey, Elaine and Whitehead, Bill 2006. Using specialist nurse mentors to boost placement capacity. Nursing Times.
Preceptorship pays off.
Whitehead, B. 2014. Preceptorship pays off. RCN Publishing Company Ltd. https://doi.org/10.7748/ns2014.02.28.25.72.s50
Are newly qualified nurses prepared for practice?
Holmes, Dinah and Whitehead, Bill 2011. Are newly qualified nurses prepared for practice? Nursing Times.
Using reflection on reading for revalidation
Collins, G., Brown, J., Henshaw, L. and Whitehead, B. 2015. Using reflection on reading for revalidation. Nursing Times. 111 (23-24), pp. 14-16.
Supporting newly qualified nurse transition: A case study in a UK hospital.
Whitehead, Bill, Owen, Patricia, Henshaw, L., Beddingham, Elaine and Simmons, Maxine 2015. Supporting newly qualified nurse transition: A case study in a UK hospital. Nurse education today. https://doi.org/10.1016/j.nedt.2015.07.008
Get online to learn and be part of a huge global nursing group
Whitehead, B. 2014. Get online to learn and be part of a huge global nursing group. Nursing Times. 110 (24), p. 11.
"Why do nurses feel unable to challenge doctors' decisions"?
Whitehead, B. 2014. "Why do nurses feel unable to challenge doctors' decisions"? Nursing Times. 110 (7), p. 7.
Preceptorship Research Project Report: Chesterfield Royal Hospital NHS foundation trust
Barton, Merryn, Beddingham, Elaine, Henshaw, L., Owen, Patricia, Simmons, Maxine and Whitehead, Bill 2014. Preceptorship Research Project Report: Chesterfield Royal Hospital NHS foundation trust. Chesterfield Royal Hospital NHS Trust.
Outcomes of a research project to identify the enablers and barriers to effective preceptorship for newly qualified nurses
Whitehead, Bill, Beddingham, Elaine, Hickman, C., Johnson, E., Barrett, R., Owen, Patricia, Simmons, Maxine, Barton, Merryn and Walker, Carl 2012. Outcomes of a research project to identify the enablers and barriers to effective preceptorship for newly qualified nurses. European Federation of Nurse Educators (FINE) with the RCN Education Forum International Conference 2012 Cardiff City Hall, Wales, UK.
Supporting newly qualified nurses in the UK: a systematic literature review
Whitehead, Bill, Owen, Patricia, Holmes, Dinah, Beddingham, Elaine, Simmons, Maxine, Henshaw, L., Barton, Merryn and Walker, Carl 2013. Supporting newly qualified nurses in the UK: a systematic literature review. https://doi.org/10.1016/j.nedt.2013.01.009
Preceptorship programmes in the UK: A systematic literature review
Beddingham, Elaine, Henshaw, L., Owen, Patricia, Simmons, Maxine, Walker, Carl and Whitehead, Bill 2012. Preceptorship programmes in the UK: A systematic literature review. Chesterfield Royal Hospital NHS Trust.