Reported school experiences of young people living with sickle cell disorder in England.

Journal article


Dyson, Simon M., Abuateya, Hala, Atkin, Karl, Culley, Lorraine, Dyson, Sue E. and Rowley, Dave 2010. Reported school experiences of young people living with sickle cell disorder in England. British Educational Research Journal. https://doi.org/10.1080/01411920902878941
AuthorsDyson, Simon M., Abuateya, Hala, Atkin, Karl, Culley, Lorraine, Dyson, Sue E. and Rowley, Dave
Abstract

A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government-defined ‘persistent absence’. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not being allowed water in class; a third reported being made to take unsuitable exercise and being called lazy when tired. Children perceived both physical environment (temperature, school furniture) and social environment (being upset by teachers or other pupils) as triggers to episodes of their illness. Policy initiatives on school absences; preventive measures to ensure maintenance of good health; and measures to prevent perceived social attitudes precipitating ill health would also support children with other chronic illnesses at school.

Year2010
JournalBritish Educational Research Journal
PublisherWiley
ISSN0141-9889
Digital Object Identifier (DOI)https://doi.org/10.1080/01411920902878941
Web address (URL)http://hdl.handle.net/10545/622798
hdl:10545/622798
Publication dates2010
Publication process dates
Deposited06 Jul 2018, 11:43
Permalink -

https://repository.derby.ac.uk/item/934q4/reported-school-experiences-of-young-people-living-with-sickle-cell-disorder-in-england

  • 12
    total views
  • 0
    total downloads
  • 1
    views this month
  • 0
    downloads this month

Export as

Related outputs

Exploring factors having an impact on attitudes and motivations towards volunteering in the undergraduate nursing student population − A comparative study of the UK and Ghana
Dyson, Sue E., Korsah, K.A., Liu, L.Q., O’Driscoll, M. and van den Akker, O.B.A 2021. Exploring factors having an impact on attitudes and motivations towards volunteering in the undergraduate nursing student population − A comparative study of the UK and Ghana. Nurse Education in Practice. https://doi.org/10.1016/j.nepr.2021.103050.
Predicting self-compassion in UK nursing students: Relationships with resilience, engagement, motivation, and mental wellbeing
Kotera, Y., Cockerill, V., Chircop, James, Kaluzeviciute, G. and Dyson, Sue E. 2021. Predicting self-compassion in UK nursing students: Relationships with resilience, engagement, motivation, and mental wellbeing. Nurse Education in Practice. https://doi.org/10.1016/j.nepr.2021.102989
Development of NURSE education in Saudi Arabia, Jordan and Ghana: From undergraduate to doctoral programmes
Anthony, Denis, Alosaimi, Dalyal, Dyson, Sue E., Saleh, Mohammad and Korsah, Kwadwo 2020. Development of NURSE education in Saudi Arabia, Jordan and Ghana: From undergraduate to doctoral programmes. Nurse Education in Practice. https://doi.org/10.1016/j.nepr.2020.102857
Routledge international handbook of nurse education
Dyson, Sue E. and McAllister, Margaret 2019. Routledge international handbook of nurse education. Routledge.
Parental and health professional evaluations of a support service for parents of excessively crying infants
Bamber, Deborah, Powell, Charlotte, Long, Jaqui, Garratt, Rosie, Brown, Jayne, Rudge, Sally, Morris, Tom, Bhupendra Jaicim, Nishal, Plachcinski, Rachel, Dyson, Sue E., Boyle, Elaine, Turney, Nicole, Chessman, Joanne and St James-Roberts, Ian 2019. Parental and health professional evaluations of a support service for parents of excessively crying infants. BMC Health Services Research. 19 (1). https://doi.org/10.1186/s12913-019-4430-5
Evaluating clinical placements in Saudi Arabia with the CLES+T scale
Anthony, Denis, Al-Anazi, Norah, Alosaimi, Dalyal, Pandaan, Isabelita and Dyson, Sue E. 2019. Evaluating clinical placements in Saudi Arabia with the CLES+T scale. Nurse Education in Practice. https://doi.org/10.1016/j.nepr.2019.07.004
Parents’ experiences of having an excessively crying baby and implications for support services
Garratt, Rosemary, Bamber, Deborah, Powell, Charlotte, Long, Jaqui, Brown, Jayne, Turney, Nicy, Chessman, Jo, Dyson, Sue E. and St James-Roberts, Ian 2019. Parents’ experiences of having an excessively crying baby and implications for support services. Journal of health visiting. https://doi.org/10.12968/johv.2019.7.3.132
An exploratory study to identify risk factors for the development of capecitabine-induced Palmar Plantar Erythrodysesthesia (PPE)
Law, Annie, Dyson, Sue E. and Anthony, Denis 2015. An exploratory study to identify risk factors for the development of capecitabine-induced Palmar Plantar Erythrodysesthesia (PPE). Journal of Advanced Nursing.. https://doi.org/10.1111/jan.12639
Education and young people with sickle cell disorder: a knowledge review.
Abuateya, Hala, Atkin, Karl, Culley, Lorraine A., Dyson, Sue E. and Dyson, Simon M. 2008. Education and young people with sickle cell disorder: a knowledge review. Diversity in Health and Social Care.
An exploratory study to identify risk factors for the development of capecitabine-induced palmar plantar erythrodysesthesia (PPE).
Law, Annie, Dyson, Sue E. and Anthony, Denis 2015. An exploratory study to identify risk factors for the development of capecitabine-induced palmar plantar erythrodysesthesia (PPE). Journal of Advanced Nursing.. https://doi.org/10.1111/jan.12639
School ethos and variation in health experience of young people with sickle cell disorder at school.
Dyson, Sue E., Atkin, Karl, Culley, Lorraine, Demaine, Jack and Dyson, Simon M. 2012. School ethos and variation in health experience of young people with sickle cell disorder at school. Diversity and Equality in Health and Care.
Development of materials to support parents whose babies cry excessively: findings and health service implications.
Long, Jaqui, Powell, Charlotte, Bamber, Deborah, Garratt, Rosemary, Brown, Jayne, Dyson, Sue E. and St James-Roberts, Ian 2018. Development of materials to support parents whose babies cry excessively: findings and health service implications. Primary Health Care Research & Development. https://doi.org/10.1017/S1463423617000779
Mental health and wellbeing in parents of excessively crying infants: prospective evaluation of a support package.
Powell, Charlotte, Bamber, Deborah, Long, Jaqui, Garratt, Rosemary, Brown, Jayne, Rudge, Sally, Morris, Tom, Bhupendra Jaicim, Nishal, Plachcinski, Rachel, Dyson, Sue E., Boyle, Elaine and St James-Roberts, Ian 2018. Mental health and wellbeing in parents of excessively crying infants: prospective evaluation of a support package. Child: Care, Health & Development. https://doi.org/10.1111/cch.12566
Sickle cell, habitual dys-positions and fragile dispositions: young people with sickle cell at school.
Dyson, Simon M., Atkin, Karl, Culley, Lorraine A., Dyson, Sue E. and Evans, Hala 2011. Sickle cell, habitual dys-positions and fragile dispositions: young people with sickle cell at school. Sociology of Health & Illness.
Critical realism, agency and sickle cell: case studies of young people with sickle cell disorder at school
Dyson, Simon M., Atkin, Karl, Culley, Lorraine and Dyson, Sue E. 2013. Critical realism, agency and sickle cell: case studies of young people with sickle cell disorder at school. Ethnic and Racial Studies. https://doi.org/10.1080/01419870.2013.809130
A systematic review of neuromuscular electrical stimulation for pressure ulcer care in spinal cord injuries.
Liu, Liang Q., Moody, Julie, Dyson, Sue E., Traynor, Michael and Gall, Angela 2014. A systematic review of neuromuscular electrical stimulation for pressure ulcer care in spinal cord injuries.
Local authorities and the education of young people with sickle cell disorders in England.
Dyson, Simon M., Abuateya, Hala, Atkin, Karl, Culley, Lorraine A., Dyson, Sue E. and Rowley, David T. 2008. Local authorities and the education of young people with sickle cell disorders in England. International Studies in Sociology of Education. https://doi.org/10.1080/09620210802196168
The extent, variability, and attitudes towards volunteering among undergraduate nursing students: implications for pedagogy in nurse education.
Dyson, Sue E., Liu, Liang Q., van den Akker, Olga and O'Driscoll, Mike 2017. The extent, variability, and attitudes towards volunteering among undergraduate nursing students: implications for pedagogy in nurse education. Nurse Education in Practice. https://doi.org/10.1016/j.nepr.2017.01.004
A systematic review of electrical stimulation for pressure ulcer prevention and treatment in people with spinal cord injuries.
Liu, Liang Q., Moody, Julie, Dyson, Sue E., Traynor, Michael and Gall, Angela 2014. A systematic review of electrical stimulation for pressure ulcer prevention and treatment in people with spinal cord injuries. Journal of Spinal Cord Medicine. https://doi.org/10.1179/2045772314Y.0000000226
The architecture and development of multi-role course design of a web-based group training system.
Guo, Xi, Chong, Seng, Dyson, Sue E. and Picinali, Lorenzo 2013. The architecture and development of multi-role course design of a web-based group training system. International Journal of Information and Education Technology. https://doi.org/10.7763/IJIET.2013.V3.227
New role raises questions.
Traynor, Michael, Allan, Helen T., Dyson, Sue E. and Corbett, Kevin 2016. New role raises questions. Nursing Standard. https://doi.org/10.7748/ns.30.29.26.s25
Student midwives perspectives on the efficacy of feedback after objective structured clinical examination.
Killingley, Jo and Dyson, Sue E. 2016. Student midwives perspectives on the efficacy of feedback after objective structured clinical examination. British Journal of Midwifery. https://doi.org/10.12968/bjom.2016.24.5.362
The politics of health services research: health professionals as hired hands in a commissioned research project in England.
Dyson, Simon M. and Dyson, Sue E. 2014. The politics of health services research: health professionals as hired hands in a commissioned research project in England. Sociological Research Online. https://doi.org/10.5153/sro.3457
Concordance to pressure relief regimen for pressure injury prevention in seated spinal cord injury -- A new measurement tool.
Liu, Liang Q., Deegan, Rachel, Chapman, Sarah, Allan, Helen T., Traynor, Michael, Dyson, Sue E., Knight, Sarah L. and Gall, Angela 2018. Concordance to pressure relief regimen for pressure injury prevention in seated spinal cord injury -- A new measurement tool.
Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school.
Dyson, Simon M., Atkin, Karl, Culley, Lorraine A., Dyson, Sue E., Evans, Hala and Rowley, Dave T. 2010. Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school. Social Science and Medicine. https://doi.org/10.1016/j.socscimed.2010.03.010
Critical Pedagogy in Nursing: Transformational Approaches to Nurse Education in a Globalized World
Dyson, Sue E. 2018. Critical Pedagogy in Nursing: Transformational Approaches to Nurse Education in a Globalized World. Palgrave Macmillan.