We are not the same people we used to be: an exploration of family biographical narratives and identity change following traumatic brain injury

Journal article


Whiffin, Charlotte Jane, Ellis-Hill, Caroline, Bailey, Christopher, Jarrett, Nicola and Hutchinson, Peter J. 2017. We are not the same people we used to be: an exploration of family biographical narratives and identity change following traumatic brain injury. Neuropsychological Rehabilitation. https://doi.org/10.1080/09602011.2017.1387577
AuthorsWhiffin, Charlotte Jane, Ellis-Hill, Caroline, Bailey, Christopher, Jarrett, Nicola and Hutchinson, Peter J.
Abstract

Subjective changes are increasingly recognised as important in recovery and rehabilitation following traumatic brain injury. Accumulation of subjective changes over time has led many to examine the question of ‘continuity of self’ post-injury. Vacillation between feeling the same and different is common and often at odds with the medical narrative preparing families for permanent change. This position of ambiguity was examined in a qualitative narrative study. The aim of this paper is to describe the narrative structures used by uninjured members of a family to understand change. These changes relate primarily, to their perspective of whether and how the injured person had changed, but also secondarily to whether and why they themselves felt they had changed in the first year post-injury. Nine uninjured family members from three families took part in three unstructured interviews during the first twelve months post-injury. In-depth narrative analysis showed family members used biographical attendance; biographical disruption; biographical continuity and biographical reconstruction to understand change. Drawing on these findings it is argued that concentrating on a narrative of change is too limiting and that engaging in biographical narratives may help humanise care provided to injured individuals and their families. Implications for research and practice are discussed

KeywordsTraumatic brain injury; Family; Rehabilitation; Identity; Change
Year2017
JournalNeuropsychological Rehabilitation
PublisherTaylor & Francis
ISSN9602011
Digital Object Identifier (DOI)https://doi.org/10.1080/09602011.2017.1387577
Web address (URL)http://hdl.handle.net/10545/621878
hdl:10545/621878
Publication dates26 Oct 2017
Publication process dates
Deposited13 Oct 2017, 14:20
Accepted27 Sep 2017
ContributorsUniversity of Derby, Bournemouth University, University of Nottingham, University of Southampton and University of Cambridge
File
File Access Level
Controlled
File
File Access Level
Open
Permalink -

https://repository.derby.ac.uk/item/93819/we-are-not-the-same-people-we-used-to-be-an-exploration-of-family-biographical-narratives-and-identity-change-following-traumatic-brain-injury

Download files

  • 51
    total views
  • 0
    total downloads
  • 0
    views this month
  • 0
    downloads this month

Export as

Related outputs

Impact of relatives keeping patient diaries in the intensive care unit
Jordan, J. and Whiffin, C. 2023. Impact of relatives keeping patient diaries in the intensive care unit. Nursing Times. 119 (3).
The Value and Potential of Qualitative Research Methods in Neurosurgery
Whiffin, Charlotte J., Smith, Brandon G., Selveindran, Santhani M., Bashford, Tom, Esene, Ignatius N., Mee, Harry, Barki, M. Tariq, Baticulon, Ronnie E., Khu, Kathleen J., Hutchinson, Peter J. and Kolias, Angelos G. 2021. The Value and Potential of Qualitative Research Methods in Neurosurgery. World Neurosurgery. https://doi.org/10.1016/j.wneu.2021.12.040
Neurotrauma clinicians’ perspectives on the contextual challenges associated with traumatic brain injury follow up in low-income and middle-income countries: A reflexive thematic analysis
Smith, B. G., Whiffin, C., Esene, I. N, Karekezi, C., Bashford, T, Mukhtar Khan, M.,, Fontoura Solla, D. J., Devi,I. B., Paiva,W.S., Servadei,F., Hutchinson, P.J., Kolias, A.G., Figaji,A. and Rubiano, A.M. 2022. Neurotrauma clinicians’ perspectives on the contextual challenges associated with traumatic brain injury follow up in low-income and middle-income countries: A reflexive thematic analysis. PLos ONE. 17 (9). https://doi.org/10.1371/journal.pone.0274922
Co-constructing dissertations into papers for publication
Whiffin, C. and Collier, E. 2022. Co-constructing dissertations into papers for publication. Nursing Times.
Remote follow-up technologies in traumatic brain injury: a scoping review
Smith, B.G., Tumpa, S., Mantle, O., Whiffin, C.J., Mee, H., Fontoura Solla, D.J., Paiva, W.S., Newcombe, V.F.J, Kolias, A.G. and Hutchinson, P.J. 2022. Remote follow-up technologies in traumatic brain injury: a scoping review. Journal of Neurotrauma. 39 (1), p. 1289–1317. https://doi.org/10.1089/neu.2022.0138
The needs of clients coming to counselling following second harm: A Q methodology study
Kenward, Linda, whiffin, charlotte and Townend, Michael 2021. The needs of clients coming to counselling following second harm: A Q methodology study. Wiley. https://doi.org/10.1002/capr.12475
How does a narrative understanding of change in families post brain injury help us to humanise our professional practice?
Whiffin, C J and Ellis-Hill, C 2021. How does a narrative understanding of change in families post brain injury help us to humanise our professional practice? Brain Impairment. https://doi.org/10.1017/BrImp.2021.14
The experience of families following Traumatic Brain Injury in adult populations: A meta-synthesis of narrative structures.
Whiffin, Charlotte Jane, Gracey, Fergus and Ellis-Hill, Caroline 2021. The experience of families following Traumatic Brain Injury in adult populations: A meta-synthesis of narrative structures. International Journal of Nursing Studies. https://doi.org/10.1016/j.ijnurstu.2021.104043
Neurotrauma clinicians’ perspectives on the contextual challenges associated with long-term follow-up following traumatic brain injury in low-income and middle-income countries: a qualitative study protocol
Smith, Brandon George, Whiffin, Charlotte Jane, Esene, Ignatius N, Karekezi, Claire, Bashford, Tom, Mukhtar Khan, Muhammad, Fontoura Solla, Davi Jorge, Indira Devi, Bhagavatula, Hutchinson, Peter John, Kolias, Angelos G, Figaji, Anthony and Rubiano, Andres M 2021. Neurotrauma clinicians’ perspectives on the contextual challenges associated with long-term follow-up following traumatic brain injury in low-income and middle-income countries: a qualitative study protocol. BMJ Open. 11 (3), p. e041442. https://doi.org/10.1136/bmjopen-2020-041442
Neurosurgeons’ experiences of conducting and disseminating clinical research in low-income and middle-income countries: a reflexive thematic analysis
Whiffin, Charlotte Jane, Smith, Brandon George, Esene, Ignatius N, Karekezi, Claire, Bashford, Tom, Mukhtar Khan, Muhammad, Hutchinson, Peter John, Kolias, Angelos G, Fontoura Solla, Davi Jorge, Paiva, Wellingson S and Figaji, Anthony 2021. Neurosurgeons’ experiences of conducting and disseminating clinical research in low-income and middle-income countries: a reflexive thematic analysis. BMJ Open. 11 (9), pp. 1-12. https://doi.org/10.1136/bmjopen-2021-051806
Neurosurgeons’ experiences of conducting and disseminating clinical research in low- and middle-income countries: A qualitative study protocol
Whiffin, Charlotte, J., Smith, Brandon, G., Ignatius, Esene, N., Karekezi, Claire, Bashford, Tom, Khan, Muhammed, M, Solla, Davi, JF, Hutchinson, Peter, J. and Kolias, Angelos 2020. Neurosurgeons’ experiences of conducting and disseminating clinical research in low- and middle-income countries: A qualitative study protocol. BMJ Open. https://doi.org/10.1136/bmjopen-2020-038939
An exploration of family in the context of head injury: a narrative understanding of change
Secretary, SRR, whiffin, charlotte, Bailey, Christopher, Ellis-Hill, Caroline, Nikki, Jarrett and Peter, Hutchinson J. 2020. An exploration of family in the context of head injury: a narrative understanding of change. Clinical Rehabilitation. https://doi.org/10.1177/0269215520902499
How to conduct a systematic search for a systematic literature review
Whiffin, charlotte 2020. How to conduct a systematic search for a systematic literature review. OH Today.
Pre-nursing care experience and implications for its role in maintaining interest and motivation in nursing
Whiffin, Charlotte, Baker, D., Nichols, Julia, Pyer, Michelle and Henshaw, L. 2019. Pre-nursing care experience and implications for its role in maintaining interest and motivation in nursing. Nursing Times.
Collaborative development of an accelerated graduate entry nursing programme outside of traditional funding mechanisms
Whiffin, Charlotte Jane, Clarke, Helen, Brundrett, Heather, Baker, D. and Whitehead, Bill 2018. Collaborative development of an accelerated graduate entry nursing programme outside of traditional funding mechanisms. Nurse Education in Practice. 28, pp. 314-317. https://doi.org/10.1016/j.nepr.2017.09.017
‘Am I a student or a Health Care Assistant?’ A qualitative evaluation of a programme of pre-nursing care experience.
Whiffin, Charlotte Jane, Baker, D., Henshaw, L., Nichols, Julia J. and Pyer, Michelle 2018. ‘Am I a student or a Health Care Assistant?’ A qualitative evaluation of a programme of pre-nursing care experience. Journal of Advanced Nursing.. https://doi.org/10.1111/jan.13788
Making the link between critical appraisal, thinking and analysis
Whiffin, Charlotte Jane and Hasselder, Alison 2013. Making the link between critical appraisal, thinking and analysis. British Journal of Nursing. https://doi.org/10.12968/bjon.2013.22.14.831
Challenges and solutions during analysis in a longitudinal narrative case study
Whiffin, Charlotte Jane, Bailey, Christopher, Ellis-Hill, Caroline and Jarrett, Nicola 2014. Challenges and solutions during analysis in a longitudinal narrative case study. Nurse Researcher. https://doi.org/10.7748/nr2014.03.21.4.20.e1238
Feeling unsafe in the healthcare setting: patients' perspectives
Kenward, Linda, Whiffin, Charlotte Jane and Spalek, Basia 2017. Feeling unsafe in the healthcare setting: patients' perspectives. British Journal of Nursing. https://doi.org/10.12968/bjon.2017.26.3.143
Narratives of family transition during the first year post-head injury: perspectives of the non-injured members
Whiffin, Charlotte Jane, Bailey, Christopher, Ellis-Hill, Caroline, Jarrett, Nicola and Hutchinson, Peter J. 2014. Narratives of family transition during the first year post-head injury: perspectives of the non-injured members. Journal of Advanced Nursing.. https://doi.org/10.1111/jan.12551