An exploration of family in the context of head injury: a narrative understanding of change

Journal article


Secretary, SRR, whiffin, charlotte, Bailey, Christopher, Ellis-Hill, Caroline, Nikki, Jarrett and Peter, Hutchinson J. 2020. An exploration of family in the context of head injury: a narrative understanding of change. Clinical Rehabilitation. https://doi.org/10.1177/0269215520902499
AuthorsSecretary, SRR, whiffin, charlotte, Bailey, Christopher, Ellis-Hill, Caroline, Nikki, Jarrett and Peter, Hutchinson J.
Abstract

Traumatic brain injury is potentially devastating. Families commonly respond by supporting the injured individual and their recovery. However, family members are at risk of negative psychological outcomes and family functioning has emerged as a key variable post injury. What is less understood are the subjective changes experienced by families and the impact these have post injury. A longitudinal narrative case study using in-depth narrative qualitative interviews. Data were collected a one, three and 12 months post injury. Nine non-injured family members from three families were recruited from an acute neurosurgical ward. Five interwoven narrative threads were identified: trauma, recovery, autobiographical, suffering and family. The narrative approach emphasized that the first-year post-head injury was a turbulent time for families, who were active agents in the process of change. Families’ stories of illness from a nonpatient perspective need recognition and validation in their own right. understanding this experience in terms of biographical narratives helps to recognize the vacillation between change and continuity. Adopting a narrative approach to rehabilitation may be more positive than adopting a model of loss. Change is not limited to the injured person and family members need help to understand that they too are changing as a result of their experiences. In addition, it is proposed that there be a shift in the discourse in research and practice literature away from loss and towards transition, with greater recognition of the role that uninjured family members play in making sense of change post injury.

KeywordsRehabilitation; Traumatic Brain Injury; Family; Qualitative
Year2020
JournalClinical Rehabilitation
PublisherSAGE Publications
ISSN0269-2155
1477-0873
Digital Object Identifier (DOI)https://doi.org/10.1177/0269215520902499
Web address (URL)http://hdl.handle.net/10545/624626
http://journals.sagepub.com/page/policies/text-and-data-mining-license
hdl:10545/624626
Publication dates13 Feb 2020
Publication process dates
Deposited27 Mar 2020, 14:36
Accepted2020
ContributorsUniversity of Derby, University of Nottingham, Bournemouth University, University of Portsmouth and University of Cambridge
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