Experience of identity change in people who reported a diagnosis of multiple sclerosis

Journal article


Barker, A., Smale, K., Hunt, N., Lincoln, N.B. and das Nair, R 2019. Experience of identity change in people who reported a diagnosis of multiple sclerosis. International Journal of MS Care. 21 (5), pp. 235-242. https://doi.org/10.7224/1537-2073.2018-069
AuthorsBarker, A., Smale, K., Hunt, N., Lincoln, N.B. and das Nair, R
Abstract

A diagnosis of multiple sclerosis (MS) can lead to changes to a person's sense of self. The aim of this study was to investigate the subjective experience of identity change and subsequent adjustment to MS. Semistructured interviews were conducted with 16 people who reported having MS. Interviews were analyzed using thematic analysis. In the early stages of disease progression, participants wanted to compartmentalize the disease. Over time, through reflected self-appraisals, brought about by increasing symptoms and changed relationships with others, the disease became a part of participants' self-identity. For people with MS, incorporating and accepting the disease as part of their self-identity can have positive implications for seeking and receiving support.

Keywordsmultiple sclerosis ; sense of self ; subjective experience
Year2019
JournalInternational Journal of MS Care
Journal citation21 (5), pp. 235-242
PublisherMeridian Allen Press
Digital Object Identifier (DOI)https://doi.org/10.7224/1537-2073.2018-069
Web address (URL)https://meridian.allenpress.com/ijmsc/article/21/5/235/430095/Experience-of-Identity-Change-in-People-Who
https://nottingham-repository.worktribe.com/output/1536753
Output statusPublished
Publication dates
Online01 Sep 2019
Publication process dates
Accepted10 Feb 2019
Deposited24 Jun 2022
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https://repository.derby.ac.uk/item/973xw/experience-of-identity-change-in-people-who-reported-a-diagnosis-of-multiple-sclerosis

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