Acceptance and identity change: An interpretative phenomenological analysis of carers’ experiences in myalgic encephalopathy/chronic fatigue syndrome
Journal article
Catchpole, Sarah and Garip, Gulcan 2019. Acceptance and identity change: An interpretative phenomenological analysis of carers’ experiences in myalgic encephalopathy/chronic fatigue syndrome. Journal of Health Psychology. https://doi.org/10.1177/1359105319834678
| Authors | Catchpole, Sarah and Garip, Gulcan |
|---|---|
| Abstract | Myalgic encephalopathy/chronic fatigue syndrome is a debilitating condition and many people rely heavily on family carers. This study explored the caring experiences of seven family carers. Four themes were established: relations with others, role and identity changes, coping with change and uncertainty, and information and support seeking. Caring disrupted multiple areas of carers’ lives, including their identities and relationships. Scepticism from others about myalgic encephalopathy/chronic fatigue syndrome was particularly distressing. Acceptance was important for coping and helped some carers achieve positive growth within spousal relationships. Improving support and advice for carers and acknowledging their caring burden could improve their well-being. |
| Keywords | chronic fatigue syndrome, family, interpretative phenomenological analysis, qualitative methods, well-being |
| Year | 2019 |
| Journal | Journal of Health Psychology |
| Publisher | Sage |
| ISSN | 13591053 |
| 14617277 | |
| Digital Object Identifier (DOI) | https://doi.org/10.1177/1359105319834678 |
| Web address (URL) | http://hdl.handle.net/10545/623739 |
| http://creativecommons.org/licenses/by-nc-nd/3.0/us/ | |
| hdl:10545/623739 | |
| Publication dates | 21 Mar 2019 |
| Publication process dates | |
| Deposited | 08 May 2019, 08:01 |
| Accepted | 28 Jan 2019 |
| Rights | Attribution-NonCommercial-NoDerivs 3.0 United States |
| Contributors | University of Derby |
| File | File Access Level Open |
| File | File Access Level Open |
| File | File Access Level Open |
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