Systematic review and meta-synthesis of coping with retinitis pigmentosa: implications for improving quality of life
Journal article
Garip, Gulcan and Kamal, Atiya 2019. Systematic review and meta-synthesis of coping with retinitis pigmentosa: implications for improving quality of life. BMC Ophthalmology. 19 (1). https://doi.org/10.1186/s12886-019-1169-z
| Authors | Garip, Gulcan and Kamal, Atiya |
|---|---|
| Abstract | Retinitis pigmentosa (RP) are a group of incurable and inherited eye conditions, and the leading cause of inherited blindness in people under the age of 60. The aim of this systematic review and meta-synthesis was to present a comprehensive overview of qualitative papers on experiences and coping strategies of adults living with RP, and how these influence quality of life. A pre-registered search strategy was applied in nine databases and 12 articles met eligibility criteria. Studies included were from Australia, Brazil, Ireland, Netherlands, Republic of Korea, United Kingdom, and USA. The overall sample was based on 126 people with RP (ages ranging from 18 to 85; at least 65 female). Principles of meta-ethnography were used to synthesise the articles revealing five higher-level meta-themes. The five higher-level meta-themes were, 1) managing identity: making sense of RP, managing autonomy and independence; 2) living with RP: practical and emotional issues; 3) experiences with healthcare professionals and other social support; 4) adaptive and maladaptive coping strategies; and 5) impact of RP on work and career. A conceptual model was developed by grouping higher-level meta-themes as intra- and inter-individual factors and how they may be implicated with coping strategies and quality of life. This review established factors that can be explored as potential psychosocial influences in the relationship between coping strategies and quality of life in people with RP. Further understanding of these factors and mechanisms can help inform intervention development to support adaptive coping in living with RP and positively impact quality of life. |
| Keywords | retinitis pigmentosa; quality of life |
| Year | 2019 |
| Journal | BMC Ophthalmology |
| Journal citation | 19 (1) |
| Publisher | BMC (Springer Nature) |
| ISSN | 14712415 |
| Digital Object Identifier (DOI) | https://doi.org/10.1186/s12886-019-1169-z |
| Web address (URL) | http://hdl.handle.net/10545/624121 |
| http://creativecommons.org/licenses/by-nc-nd/3.0/us/ | |
| hdl:10545/624121 | |
| Publication dates | 13 Aug 2019 |
| Publication process dates | |
| Deposited | 16 Aug 2019, 13:33 |
| Accepted | 01 Aug 2019 |
| Rights | Attribution-NonCommercial-NoDerivs 3.0 United States |
| Contributors | University of Derby |
| File | File Access Level Open |
| File | File Access Level Open |
| File | File Access Level Open |
Permalink -
https://repository.derby.ac.uk/item/94231/systematic-review-and-meta-synthesis-of-coping-with-retinitis-pigmentosa-implications-for-improving-quality-of-life
Download files
46
total views14
total downloads0
views this month0
downloads this month
Export as
Related outputs
A Pilot Study Investigating the Feasibility, Reach-Out, Acceptability, Fidelity, and Efficacy of a Group Laughie Prescription on the Well-Being of Earthquake Survivors in Türkiye
Kuru Alici, N, Gonot-Schoupinsky, F and Garip, G. 2024. A Pilot Study Investigating the Feasibility, Reach-Out, Acceptability, Fidelity, and Efficacy of a Group Laughie Prescription on the Well-Being of Earthquake Survivors in Türkiye. Issues in Mental Health Nursing. 45 (11), pp. 1-9. https://doi.org/10.1080/01612840.2024.2389138Tested Instructions for the 1-Minute Laughie Laughter Prescription
Kuru Alici, N., Gonot-Schoupinsky, F. and Garip, G. 2024. Tested Instructions for the 1-Minute Laughie Laughter Prescription. The Journal for Nurse Practitioners . 20 (8), pp. 1-4. https://doi.org/10.1016/j.nurpra.2024.105132University makes me angry: Investigating stimulus-response (S-R) and cognitive-mediation (C-M) emotion beliefs in undergraduate students
Turner, M., Garip, G., Boatwright, D., Chandler, C., Chadha, N. and Wood, A. 2024. University makes me angry: Investigating stimulus-response (S-R) and cognitive-mediation (C-M) emotion beliefs in undergraduate students. PLos ONE. 19 (2), pp. 1-16. https://doi.org/10.1371/journal.pone.0294777“Turbulence even in a bubble”: A reflexive thematic analysis with family caregivers of people with dementia in the United Kingdom during and beyond the COVID-19 pandemic
Danby, A., Benson, T. and Garip, G. 2023. “Turbulence even in a bubble”: A reflexive thematic analysis with family caregivers of people with dementia in the United Kingdom during and beyond the COVID-19 pandemic. Psychology and Health. pp. 1-26. https://doi.org/10.1080/08870446.2023.2289460The Hidden Pandemic: A Qualitative Study on How Middle-Aged Women Make Sense Of Managing Their Long Covid Symptoms
Collier, D. and Garip, G. 2023. The Hidden Pandemic: A Qualitative Study on How Middle-Aged Women Make Sense Of Managing Their Long Covid Symptoms. Health Psychology Report. pp. 1-13.Investigation of the Caregivers’ Quality of Life in Patients with Renal Failure
Stavrou, K. and Garip, G. 2023. Investigation of the Caregivers’ Quality of Life in Patients with Renal Failure. EC PSYCHOLOGY AND PSYCHIATRY. 12 (3), pp. 13-25.
The influence of self‐management, anxiety and depression on chronic eczema‐related quality of life
Standen, L. and Garip, G. 2022. The influence of self‐management, anxiety and depression on chronic eczema‐related quality of life. Skin Health and Disease. 2 (4), pp. 1-8. https://doi.org/10.1002/ski2.106Facilitating the planning and evaluation of narrative intervention reviews: Systematic Transparency in All Intervention Reviews (STAIR)
Gonot-Schoupinsky, Freda, Garip, Gulcan and Sheffield, David 2021. Facilitating the planning and evaluation of narrative intervention reviews: Systematic Transparency in All Intervention Reviews (STAIR). Evaluation and Program Planning. https://doi.org/10.1016/j.evalprogplan.2021.102043Teach Public Health With a Sense of Humor: Why (and How to) Be a Funnier and More Effective Public Health Professor and Laugh All the Way to Your Classroom
Gonot-Schoupinsky, Freda and Garip, Gulcan 2021. Teach Public Health With a Sense of Humor: Why (and How to) Be a Funnier and More Effective Public Health Professor and Laugh All the Way to Your Classroom. in: The Curious Academic Publishing.The Covid-19 Pandemic as an Opportunity for Positive Psychology to Promote a Wider-Ranging Definition of Humour and Laughter
Gonot-Schoupinsky, Freda and Garip, Gülcan 2021. The Covid-19 Pandemic as an Opportunity for Positive Psychology to Promote a Wider-Ranging Definition of Humour and Laughter. in: The Palgrave Handbook of Humour Research Palgrave Macmillan/ Springer.The Engage-Disengage Model as an Inclusive Model for the Promotion of Healthy and Successful Aging in the Oldest-old
Gonot-Schoupinsky, Freda, Garip, Gulcan and Sheffield, David 2021. The Engage-Disengage Model as an Inclusive Model for the Promotion of Healthy and Successful Aging in the Oldest-old. Activities, Adaptation & Aging. https://doi.org/10.1080/01924788.2021.1970892“We All Need Purpose and Reason to Be Here.”: A Qualitative Investigation of How Members of Alcoholics Anonymous with Long-term Recovery Experience Aging
mcinerney, Kevin, Garip, Gulcan and benson, tony 2021. “We All Need Purpose and Reason to Be Here.”: A Qualitative Investigation of How Members of Alcoholics Anonymous with Long-term Recovery Experience Aging. Alcoholism Treatment Quarterly. https://doi.org/10.1080/07347324.2021.1947165The Effect of Self-Compassion on Job Burnout and Hours Worked in Employees’ Working from Home
Cotterill, Matthew, Kotera, Y. and Garip, Gulcan 2021. The Effect of Self-Compassion on Job Burnout and Hours Worked in Employees’ Working from Home. Journal of Concurrent Disorders.Health Benefits of Ikigai: A Review of Literature
Kotera, Y., Kaluzeviciute, G., Garip, Gulcan, McEwan, Kirsten and Chamberlain, Katy 2021. Health Benefits of Ikigai: A Review of Literature. in: Concurrent Disorders Society Publishing.Development and implementation of evaluation resources for a green outdoor educational program
Garip, Gulcan, Richardson, Miles, Tinkler, Abigail, Glover, Susannah and Rees, Alice 2020. Development and implementation of evaluation resources for a green outdoor educational program. Journal of Environmental Education. https://doi.org/10.1080/00958964.2020.1845588Learners’ perceptions and experiences of studying psychology online
Garip G, Seneviratne S and Iacovou S 2020. Learners’ perceptions and experiences of studying psychology online. Journal of Computers in Education. https://doi.org/10.1007/s40692-020-00167-4Laughter and humour for personal development: A systematic scoping review of the evidence
Gonot-Schoupinsky, Freda N., Garip, Gulcan and Sheffield, David 2020. Laughter and humour for personal development: A systematic scoping review of the evidence. European Journal of Integrative Medicine. https://doi.org/10.1016/j.eujim.2020.101144“Thumb Exercise”: an interpretative phenomenological analysis of psychosocial factors encouraging inactive adults to engage with their smartphones rather than physical activity
Hedges, Tallulah and Garip, Gulcan 2020. “Thumb Exercise”: an interpretative phenomenological analysis of psychosocial factors encouraging inactive adults to engage with their smartphones rather than physical activity. Physical Activity and Health. https://doi.org/10.5334/paah.50Prescribing laughter to ameliorate mental health, sleep, and wellbeing in university students: A protocol for a feasibility study of a randomised controlled trial.
Gonot-Schoupinsky FN, Garip G, Sheffield D, Omar OM and Arora T 2020. Prescribing laughter to ameliorate mental health, sleep, and wellbeing in university students: A protocol for a feasibility study of a randomised controlled trial. Contemporary clinical trials communications. Vol 20 (Dec 2020), p. 100676. https://doi.org/10.1016/j.conctc.2020.100676An integrative systematic review of creative arts interventions for older informal caregivers of people with neurological conditions
Irons, J Yoon, Garip, Gulcan, Cross, Ainslea J, Sheffield, David and Bird, Jamie 2020. An integrative systematic review of creative arts interventions for older informal caregivers of people with neurological conditions. PLos ONE. 15 (12), p. e0243461. https://doi.org/10.1371/journal.pone.0243461Differential qualitative analysis: a pragmatic qualitative methodology to support personalised healthcare research in heterogenous samples
Gonot-Schoupinsky, Freda and Garip, Gulcan 2019. Differential qualitative analysis: a pragmatic qualitative methodology to support personalised healthcare research in heterogenous samples. The Qualitative Report.Emotion dysregulation and loneliness as predictors of food addiction
Tatsi, Eirini, Kamal, Atiya, Turvill, Alistair and Regina, Holler 2019. Emotion dysregulation and loneliness as predictors of food addiction. Journal of Health and Social Sciences. https://doi.org/10.19204/2019/mtnd5A flexible framework for planning and evaluating early-stage health interventions: FRAME-IT
Gonot-Schoupinsky, Freda N. and Garip, Gulcan 2019. A flexible framework for planning and evaluating early-stage health interventions: FRAME-IT. Evaluation and Program Planning. 77, p. 101685. https://doi.org/10.1016/j.evalprogplan.2019.101685Acceptance and identity change: An interpretative phenomenological analysis of carers’ experiences in myalgic encephalopathy/chronic fatigue syndrome
Catchpole, Sarah and Garip, Gulcan 2019. Acceptance and identity change: An interpretative phenomenological analysis of carers’ experiences in myalgic encephalopathy/chronic fatigue syndrome. Journal of Health Psychology. https://doi.org/10.1177/1359105319834678Prescribing laughter to increase well-being in healthy adults: an exploratory mixed methods feasibility study of the Laughie
Gonot-Schoupinsky, Freda and Garip, Gulcan 2019. Prescribing laughter to increase well-being in healthy adults: an exploratory mixed methods feasibility study of the Laughie. European Journal of Integrative Medicine. 26, pp. 56-64. https://doi.org/10.1016/j.eujim.2019.01.005Large expert-curated database for benchmarking document similarity detection in biomedical literature search.
Brown P, RELISH Consortium, Zhou Y and Garip, G. 2019. Large expert-curated database for benchmarking document similarity detection in biomedical literature search. Database : the journal of biological databases and curation. Vol 2019, pp. 1 - 67. https://doi.org/10.1093/database/baz085The lived experiences of experienced Vipassana Mahasi meditators: an interpretative phenomenological analysis.
Ekici, Cimen, Garip, Gulcan and Van Gordon, William 2018. The lived experiences of experienced Vipassana Mahasi meditators: an interpretative phenomenological analysis. Mindfulness. https://doi.org/10.1007/s12671-018-1063-4The psychosocial impact of caregiving in dementia and quality of life: a systematic review and meta-synthesis of qualitative research.
Cross, Ainslea, Garip, Gulcan and Sheffield, David 2018. The psychosocial impact of caregiving in dementia and quality of life: a systematic review and meta-synthesis of qualitative research. psychology and health. https://doi.org/10.1080/08870446.2018.1496250Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research.
Topcu, Gogem, Buchanan, Heather, Aubeeluck, Aimee and Garip, Gulcan 2016. Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research. psychology and health. https://doi.org/10.1080/08870446.2016.1139112Laughter and humour interventions for well-being in older adults: A systematic review and intervention classification.
Gonot-Schoupinsky, Freda N. and Garip, Gulcan 2018. Laughter and humour interventions for well-being in older adults: A systematic review and intervention classification. Complementary therapies in medicine. https://doi.org/10.1016/j.ctim.2018.04.009Coping strategies, vision-related quality of life, and emotional health in managing retinitis pigmentosa: a survey study.
Anil, Krithika and Garip, Gulcan 2018. Coping strategies, vision-related quality of life, and emotional health in managing retinitis pigmentosa: a survey study. BMC Ophthalmology. https://doi.org/10.1186/s12886-018-0689-2Evaluating the feasibility of a web-based weight loss programme for naval service personnel with excess body weight.
Garip, Gulcan, Morton, Kate, Bridger, Robert and Yardley, Lucy 2017. Evaluating the feasibility of a web-based weight loss programme for naval service personnel with excess body weight. Pilot and Feasibility Studies. https://doi.org/10.1186/s40814-017-0122-2