“I didn’t have any option”: Experiences of people receiving in-centre haemodialysis during the COVID-19 pandemic

Journal article

Danton, I., Kapadi, R., Elander, J., Louth, C., Selby, N. M., Taal, M. W., Stalker, C. and Mitchell, K. 2022. “I didn’t have any option”: Experiences of people receiving in-centre haemodialysis during the COVID-19 pandemic . Journal of Kidney Care. 7 (3), pp. 112-119. https://doi.org/10.12968/jokc.2022.7.3.112
AuthorsDanton, I., Kapadi, R., Elander, J., Louth, C., Selby, N. M., Taal, M. W., Stalker, C. and Mitchell, K.
Abstract

People receiving in-centre haemodialysis (ICHD) during the COVID-19 pandemic had to adjust to more challenging treatment conditions. To explore people’s experiences of adjustment to ICHD during the pandemic. Thematic analysis of in-depth, semi-structured interviews with 14 adult UK ICHD patients.
Findings: Four themes were identified: ‘perceptions of the threat’, ‘impacts on treatment’, ‘impaired communication’ and ‘coping and positive adjustment’. These described participants’ experiences of vulnerability to COVID-19; the ways the pandemic affected dialysis and clinical care; the impact that measures to reduce viral transmission had on communication and interaction within dialysis units; and ways that participants coped and made positive adjustments to the adversities imposed by the pandemic. The findings give insights into adjustment during extreme adversity. They also help to identify ways that support for ICHD patients could be improved as pandemic conditions recede, and ways that dialysis units could prepare for future outbreaks of infectious illness.

KeywordsCOVID-19; Haemodialysis; Wellbeing; Coping; Vulnerability; Communication
Year2022
JournalJournal of Kidney Care
Journal citation7 (3), pp. 112-119
PublisherMAG Healthcare
ISSN2397-9534
Digital Object Identifier (DOI)https://doi.org/10.12968/jokc.2022.7.3.112
Web address (URL)https://www.magonlinelibrary.com/doi/abs/10.12968/jokc.2022.7.3.112
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All rights reserved (under embargo)
File Access Level
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Output statusPublished
Publication dates
Online13 May 2022
Publication process dates
Accepted19 Apr 2022
Deposited23 Jun 2022
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Knibb, Rebecca C., Barnes, Christopher and Stalker, C. 2015. Parental confidence in managing food allergy: development and validation of the food allergy self-efficacy scale for parents (FASE-P). Clinical & Experimental Allergy. https://doi.org/10.1111/cea.12599
In search of critical thinking in psychology: an exploration of student and lecturer understandings in higher education
Duro, Elaine, Elander, James, Maratos, Frances A., Stupple, Edward J. N. and Aubeeluck, Aimee 2013. In search of critical thinking in psychology: an exploration of student and lecturer understandings in higher education. Psychology Learning & Teaching. 12 (3). https://doi.org/10.2304/plat.2013.12.3.275
Predictors of painkiller dependence among people with pain in the general population
Elander, James, Duarte, Joana, Maratos, Frances A. and Gilbert, Paul 2013. Predictors of painkiller dependence among people with pain in the general population. Pain Medicine. 15 (4), p. 613–624. https://doi.org/10.1111/pme.12263
A brief haemophilia pain coping questionnaire
Elander, James and Robinson, Georgina 2008. A brief haemophilia pain coping questionnaire. Haemophilia. https://doi.org/10.1111/j.1365-2516.2008.01822.x
A qualitative analysis of psychological processes mediating quality of life impairments in chronic daily headache
Tenhunen, K. and Elander, James 2005. A qualitative analysis of psychological processes mediating quality of life impairments in chronic daily headache. Journal of Health Psychology. https://doi.org/10.1177/1359105305051425
Pain management and symptoms of substance dependence among patients with sickle cell disease
Elander, James, Lusher, Joanne, Bevan, David and Telfer, Paul 2003. Pain management and symptoms of substance dependence among patients with sickle cell disease. Social Science and Medicine. https://doi.org/10.1016/S0277-9536(02)00553-1
Understanding the causes of problematic pain management in sickle cell disease: evidence that pseudoaddiction plays a more important role than genuine analgesic dependence
Elander, James, Lusher, Joanne, Bevan, David, Telfer, Paul and Burton, Bernice 2004. Understanding the causes of problematic pain management in sickle cell disease: evidence that pseudoaddiction plays a more important role than genuine analgesic dependence. Journal of Pain and Symptom Management. https://doi.org/10.1016/j.jpainsymman.2003.12.001
Complex skills and academic writing: a review of evidence about the types of learning required to meet core assessment criteria
Elander, James, Harrington, Katherine, Norton, Lin, Robinson, Hannah and Reddy, Peter 2006. Complex skills and academic writing: a review of evidence about the types of learning required to meet core assessment criteria. Assessment & Evaluation in Higher Education. https://doi.org/10.1080/02602930500262379
Factors affecting hospital staff judgments about sickle cell disease pain
Elander, James, Marczewska, Malgorzata, Amos, Roger, Thomas, Aldine and Tangayi, Sekayi 2006. Factors affecting hospital staff judgments about sickle cell disease pain. Journal of Behavioral Medicine. https://doi.org/10.1007/s10865-005-9042-3
Effects of area and family deprivation on risk factors for teenage pregnancy among 13 – 15-year-old girls
Smith, Debbie M. and Elander, James 2006. Effects of area and family deprivation on risk factors for teenage pregnancy among 13 – 15-year-old girls. Psychology, Health & Medicine. https://doi.org/10.1080/13548500500429353
Student beliefs and attitudes about authorial identity in academic writing
Pittam, Gail, Elander, James, Lusher, Joanne, Fox, Pauline and Payne, Nicola 2009. Student beliefs and attitudes about authorial identity in academic writing. Studies in Higher Education. https://doi.org/10.1080/03075070802528270
Development and evaluation of an intervention to improve further education students' understanding of higher education assessment criteria: three studies
Jessen, Anna and Elander, James 2011. Development and evaluation of an intervention to improve further education students' understanding of higher education assessment criteria: three studies. Journal of Further and Higher Education. https://doi.org/10.1080/03098770903272461
New lecturers' beliefs about learning, teaching and assessment in higher education: the role of the PGCLTHE programme
Norton, Lin, Aiyegbayo, Olaojo, Harrington, Katherine, Elander, James and Reddy, Peter 2011. New lecturers' beliefs about learning, teaching and assessment in higher education: the role of the PGCLTHE programme. Innovations in Education and Teaching International. https://doi.org/10.1080/14703297.2010.518426
Dyslexia, authorial identity, and approaches to learning and writing: a mixed methods study
Kinder, Julianne and Elander, James 2011. Dyslexia, authorial identity, and approaches to learning and writing: a mixed methods study. British Journal of Educational Psychology. https://doi.org/10.1111/j.2044-8279.2011.02026.x
Randomized trial of a DVD intervention to improve readiness to self-manage joint pain
Elander, James, Robinson, Georgina and Morris, John 2011. Randomized trial of a DVD intervention to improve readiness to self-manage joint pain. Pain. https://doi.org/10.1016/j.pain.2011.06.026
Evaluation of an intervention to help students avoid unintentional plagiarism by improving their authorial identity
Elander, James, Pittam, Gail, Lusher, Joanne, Fox, Pauline and Payne, Nicola 2010. Evaluation of an intervention to help students avoid unintentional plagiarism by improving their authorial identity. Assessment & Evaluation in Higher Education. https://doi.org/10.1080/02602930802687745