Respect, trust, and the management of sickle cell disease pain in hospital: comparative analysis of concern-raising behaviors, preliminary model, and agenda for international collaborative research to inform practice

Journal article

Elander, James, Beach, Mary Catherine and Haywood, Carlton 2011. Respect, trust, and the management of sickle cell disease pain in hospital: comparative analysis of concern-raising behaviors, preliminary model, and agenda for international collaborative research to inform practice. Ethnicity and Health. 16 (4-5), pp. 405-421. https://doi.org/10.1080/13557858.2011.555520
AuthorsElander, James, Beach, Mary Catherine and Haywood, Carlton
Abstract

Qualitative interview studies suggest that adult patients’ experiences of hospital treatment for sickle cell disease (SCD) pain reflect an absence of respect by providers for patients, and an absence or breakdown of trust. Systematic comparisons between treatment settings could help identify contextual influences on respect and trust.
Quantitative comparison of concern-raising behaviors (pain treatment outcomes indicating breakdowns of trust) among adult SCD patients in Baltimore, Maryland, U.S.A., and London, U.K., followed by analysis of potential explanations for differences, including socio-cultural and behavioral factors, with a preliminary model of the processes leading to concern-raising behaviors.
Rates of concern-raising behaviors were significantly higher in Baltimore than London. The model identifies respect and trust as key factors which could be targeted in efforts to improve the quality of SCD pain management in hospital.
An agenda for international, interdisciplinary research to improve the treatment of SCD pain in hospital should include: comparative analyses between countries and treatment settings of factors that could influence respect and trust; research to test hypotheses derived from models about the roles of respect and trust in the treatment of pain; studies of the impact of healthcare structures and policy on patients’ experiences of care; research focusing on developmental and interpersonal processes related to respect and trust; applications of attribution and other social psychology theories; and development and evaluation of interventions to improve the hospital treatment of SCD pain by increasing respect and trust.

KeywordsRespect; Trust; SCD pain; Concern-raising behaviors; Hospital treatment
Year2011
JournalEthnicity and Health
Journal citation16 (4-5), pp. 405-421
PublisherTaylor & Francis
ISSN1355-7858
1465-3419
Digital Object Identifier (DOI)https://doi.org/10.1080/13557858.2011.555520
Web address (URL)http://hdl.handle.net/10545/625554
http://creativecommons.org/licenses/by-nc-nd/4.0/
hdl:10545/625554
Publication dates28 Jul 2011
Publication process dates
Deposited22 Jan 2021, 12:24
Accepted14 Jan 2011
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Attribution-NonCommercial-NoDerivatives 4.0 International

ContributorsUniversity of Derby and John Hopkins University, Baltimore, MD, USA
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