Using patient feedback to adapt intervention materials based on acceptance and commitment therapy for people receiving renal dialysis

Journal article

Elander, James, Kapadi, Romaana, Coyne, Emma, Taal, Maarten W., Selby, Nicholas M., Stalker, C. and Mitchell, Kathryn 2021. Using patient feedback to adapt intervention materials based on acceptance and commitment therapy for people receiving renal dialysis. BMC Urology. 21 (1). https://doi.org/10.1186/s12894-021-00921-5
AuthorsElander, James, Kapadi, Romaana, Coyne, Emma, Taal, Maarten W., Selby, Nicholas M., Stalker, C. and Mitchell, Kathryn
Abstract

Theory-based intervention materials must be carefully adapted to meet the needs of users with specific physical conditions. Acceptance and Commitment Therapy (ACT) has been adapted successfully for cancer, chronic pain, diabetes, irritable bowel syndrome, multiple sclerosis, and a range of other conditions, but not so far for people receiving renal haemodialysis. This paper presents findings from a study to adapt ACT-based intervention materials specifically for renal dialysis.
Draft written materials consisting of four stories depicting fictitious individuals who used ACT-related techniques to help overcome different challenges and difficulties related to dialysis were adapted using a systematic patient consultation process. The participants were 18 people aged 19 to 80 years, with chronic kidney disease and receiving renal dialysis. Individual, semi-structured interviews were conducted to elicit participants’ views about how the content of the draft materials should be adapted to make them more realistic and relevant for people receiving renal dialysis and about how the materials should be presented and delivered to people receiving renal dialysis. The interview transcripts were analysed using a qualitative adaptation of the Delphi method in which themes are used as a framework for translating feedback into proposals for modifications.
The analysis of patient feedback supported the use of patient stories but suggested they should be presented by video and narrated by real dialysis patients. They also indicated specific adaptations to make the stories more credible and realistic. Participant feedback was translated into proposals for change that were considered along with clinical, ethical and theoretical factors. The outcome was a design for a video-based intervention that separated the stories about individuals from the explanations of the specific ACT techniques and provided greater structure, with material organised into smaller chunks. This intervention is adapted specifically for people receiving renal dialysis while retaining the distinctive theoretical principles of ACT.
The study shows the value of consulting patients in the development of intervention materials and illustrates a process for integrating patient feedback with theoretical, clinical and practical considerations in intervention design.

KeywordsAcceptance and commitment therapy (ACT); Tailored intervention; Kidney failure; Haemodialysis
Year2021
JournalBMC Urology
Journal citation21 (1)
PublisherSpringer Science and Business Media LLC
ISSN1471-2490
Digital Object Identifier (DOI)https://doi.org/10.1186/s12894-021-00921-5
Web address (URL)http://hdl.handle.net/10545/626136
http://creativecommons.org/licenses/by-nc-nd/4.0/
hdl:10545/626136
Publication dates15 Nov 2021
Publication process dates
Deposited24 Nov 2021, 10:41
Accepted01 Nov 2021
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Attribution-NonCommercial-NoDerivatives 4.0 International

ContributorsUniversity of Derby
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Tenhunen, K. and Elander, James 2005. A qualitative analysis of psychological processes mediating quality of life impairments in chronic daily headache. Journal of Health Psychology. https://doi.org/10.1177/1359105305051425
Pain management and symptoms of substance dependence among patients with sickle cell disease
Elander, James, Lusher, Joanne, Bevan, David and Telfer, Paul 2003. Pain management and symptoms of substance dependence among patients with sickle cell disease. Social Science and Medicine. https://doi.org/10.1016/S0277-9536(02)00553-1
Understanding the causes of problematic pain management in sickle cell disease: evidence that pseudoaddiction plays a more important role than genuine analgesic dependence
Elander, James, Lusher, Joanne, Bevan, David, Telfer, Paul and Burton, Bernice 2004. Understanding the causes of problematic pain management in sickle cell disease: evidence that pseudoaddiction plays a more important role than genuine analgesic dependence. Journal of Pain and Symptom Management. https://doi.org/10.1016/j.jpainsymman.2003.12.001
Complex skills and academic writing: a review of evidence about the types of learning required to meet core assessment criteria
Elander, James, Harrington, Katherine, Norton, Lin, Robinson, Hannah and Reddy, Peter 2006. Complex skills and academic writing: a review of evidence about the types of learning required to meet core assessment criteria. Assessment & Evaluation in Higher Education. https://doi.org/10.1080/02602930500262379
Factors affecting hospital staff judgments about sickle cell disease pain
Elander, James, Marczewska, Malgorzata, Amos, Roger, Thomas, Aldine and Tangayi, Sekayi 2006. Factors affecting hospital staff judgments about sickle cell disease pain. Journal of Behavioral Medicine. https://doi.org/10.1007/s10865-005-9042-3
Effects of area and family deprivation on risk factors for teenage pregnancy among 13 – 15-year-old girls
Smith, Debbie M. and Elander, James 2006. Effects of area and family deprivation on risk factors for teenage pregnancy among 13 – 15-year-old girls. Psychology, Health & Medicine. https://doi.org/10.1080/13548500500429353
Student beliefs and attitudes about authorial identity in academic writing
Pittam, Gail, Elander, James, Lusher, Joanne, Fox, Pauline and Payne, Nicola 2009. Student beliefs and attitudes about authorial identity in academic writing. Studies in Higher Education. https://doi.org/10.1080/03075070802528270
Development and evaluation of an intervention to improve further education students' understanding of higher education assessment criteria: three studies
Jessen, Anna and Elander, James 2011. Development and evaluation of an intervention to improve further education students' understanding of higher education assessment criteria: three studies. Journal of Further and Higher Education. https://doi.org/10.1080/03098770903272461
New lecturers' beliefs about learning, teaching and assessment in higher education: the role of the PGCLTHE programme
Norton, Lin, Aiyegbayo, Olaojo, Harrington, Katherine, Elander, James and Reddy, Peter 2011. New lecturers' beliefs about learning, teaching and assessment in higher education: the role of the PGCLTHE programme. Innovations in Education and Teaching International. https://doi.org/10.1080/14703297.2010.518426
Dyslexia, authorial identity, and approaches to learning and writing: a mixed methods study
Kinder, Julianne and Elander, James 2011. Dyslexia, authorial identity, and approaches to learning and writing: a mixed methods study. British Journal of Educational Psychology. https://doi.org/10.1111/j.2044-8279.2011.02026.x
Randomized trial of a DVD intervention to improve readiness to self-manage joint pain
Elander, James, Robinson, Georgina and Morris, John 2011. Randomized trial of a DVD intervention to improve readiness to self-manage joint pain. Pain. https://doi.org/10.1016/j.pain.2011.06.026
Evaluation of an intervention to help students avoid unintentional plagiarism by improving their authorial identity
Elander, James, Pittam, Gail, Lusher, Joanne, Fox, Pauline and Payne, Nicola 2010. Evaluation of an intervention to help students avoid unintentional plagiarism by improving their authorial identity. Assessment & Evaluation in Higher Education. https://doi.org/10.1080/02602930802687745