Huntington’s Disease Quality of Life Battery for Carers--Short Form
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Aimee Aubeeluck, Stupple, E., Malcolm B. Schofield, Alis C. Hughes, Lucienne van der Meer, Bernhard Landwehrmeyer and Aileen K. Ho 2019. Huntington’s Disease Quality of Life Battery for Carers--Short Form. American Psychological Association (APA). https://doi.org/10.1037/t77728-000
| Authors | Aimee Aubeeluck, Stupple, E., Malcolm B. Schofield, Alis C. Hughes, Lucienne van der Meer, Bernhard Landwehrmeyer and Aileen K. Ho |
|---|---|
| Abstract | The Huntington’s Disease Quality of Life Battery for Carers--Short Form (HDQoL-Cs; Aubeeluck et al., 2019) was adapted from the Huntington’s Disease Quality of Life Battery for Carers (HDQoL-C; Aubeeluck & Buchanan, 2005, 2007) to examine the caregiving experience of family carers and/or partners of patients living with Huntington’s Disease (HD). An initial 47-item questionnaire was modified from the HDQoL-C. The translation process involved dual forward translation including reconciliation and back translation, resulting in United Kingdom-English, US-English, Australian-English, Canadian-English versions, and Spanish–Spanish and US–Spanish versions. Psychometric evaluation of the data was conducted using partners and family carers from 13 countries. Exploratory and confirmatory factor analyses identified a final 23 items with two factors in Section 1 (Satisfaction with life) and three factors in Section 2 (Feelings about living with HD). Internal consistency was reported for the items. (PsycTests Database Record (c) 2020 APA, all rights reserved) |
| Year | 2019 |
| Publisher | American Psychological Association (APA) |
| Digital Object Identifier (DOI) | https://doi.org/10.1037/t77728-000 |
| Web address (URL) | https://psycnet.apa.org/doiLanding?doi=10.1037%2Ft77728-000 |
| Output status | Published |
| Publication dates | 2019 |
| Publication process dates | |
| Deposited | 25 May 2023 |
| Journal | PsycTESTS Dataset |
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